Celiac Disease For Dummies,

Celiac Disease For Dummies

About the Authors

Dedication

Authors’ Acknowledgements

Contents at a Glance

Table of Contents

Introduction

About This Book

Conventions Used in This Book

What You Don’t Have to Read

Foolish Assumptions

How This Book Is Organized

Icons Used in This Book

Where to Go from Here

Part I: Dealing with the Diagnosis of Celiac Disease

Chapter 1: Finding Out You Have Celiac Disease

Getting to Know Celiac Disease

Dealing with the Diagnosis of Celiac Disease

Knowing How Having Celiac Disease Feels

Treating Celiac Disease

Living and Thriving with Celiac Disease

Handling the News

Finding Information and Support on the Internet

Looking at “Real” (Non-Virtual) Support Groups

Chapter 2: Celiac Disease and You

Knowing What Causes Celiac Disease

Examining Gluten

Comparing Celiac Disease, Food Allergy, and Food Intolerance

Understanding How the Normal Digestive Process Works

Knowing What Goes Wrong When You Have Celiac Disease

Chapter 3: Diagnosing Celiac Disease

Figuring Out Whether You Have Celiac Disease

Understanding the Importance of Symptoms

Knowing What to Expect from the Physical Examination

Getting Blood Tests

Outside Looking In: How an Endoscopy Works

Examining What the Doctor Looks for During Your Endoscopy

Taking a Little Piece: Small Intestinal Biopsy

Diagnosing Celiac Disease When You Already Live Gluten-Free

Questioning Your Diagnosis

Chapter 4: Screening for Celiac Disease

Knowing When to Screen Someone for Celiac Disease

Determining Who Should Be Screened for Celiac Disease

Understanding How Screening for Celiac Disease Works

Asymptomatic Celiac Disease Detected by Screening

Chapter 5: What Type Am I? Looking at the Forms of Celiac Disease

What’s in a Name: The Different Types of Celiac Disease

Textbook Disease: Looking at Classical Celiac Disease

When Symptoms Suggest Something Else: Looking at Atypical Celiac Disease

Hushed but Not Forgotten: Silent Celiac Disease

Lurking in the Background: Latent Celiac Disease

Part II: How Celiac Disease Can Make You Feel

Chapter 6: Symptoms of Celiac Disease

Symptoms 101: Looking at the Big Picture

Gut Feelings: Gastrointestinal Symptoms

Weight Loss

Failure to Thrive in Children

Non-Gastrointestinal Symptoms and Celiac Disease

Chapter 7: Conditions Caused by Celiac Disease

Vanishing Vitamins

Missing Minerals

Low Blood: Anemia

Skeleton Isn’t Just An Olympic Sport: Celiac Disease and Your Bones

Oral Health

Infertility and Complications of Pregnancy

Hyposplenism and Increased Risk of Infection

Chapter 8: Conditions Associated with Celiac Disease

Understanding What “Associated” Means

Skin Deep: Dermatological Conditions

Feeling Down in the Dumps: Depression

Getting a Head Start: Neurological Manifestations

Hormonal Health: Endocrine Disorders and Celiac Disease

Disjointed: Rheumatologic Disorders

Liver and Bile Duct Conditions

Chromosomal Disorders

IgA Deficiency

Chapter 9: Celiac Disease and Cancer

Assessing How Great the Increased Risk Is

Looking at the Types of Cancer for Which You Are at Increased Risk

Screening for Cancer

Preventing Cancer

Part III: Treating Celiac Disease

Chapter 10: Treating Celiac Disease with a Gluten-Free Diet

Going Gluten-Free

Shopping Successfully for Gluten-Free Foods

Cooking Gluten-Free Food

185 Eating Out Gluten-Free

Planning for Emergencies

Dealing with Cross-Contamination

Sticking with a Gluten-Free Diet

Tracking Down Hidden Sources of Gluten

Chapter 11: Exploring Other Nutritional Considerations

Understanding Nutritional Deficiencies in Celiac Disease

Being Overweight and Having Celiac Disease

Celiac Disease and Lactose Intolerance

Living Gluten-Free as a Vegetarian

Chapter 12: Are You Responding to Your Gluten-Free Diet? (And What to Do If You Aren’t)

Knowing Whether Your Gluten-Free Diet Is Working

Exploring Why Your Gluten-Free Diet May Not Be Working

When Your Celiac Disease Won’t Settle Down

Part IV: The Long-Term: Living and Thriving with Celiac Disease

Chapter 13: Alternate and Complementary Therapies

Important Safety Info about Complementary and Alternative Medicines

Prebiotics and Probiotics

Herbal Supplements

Vitamin Supplements

Digestive Enzymes

Following the Specific Carbohydrate Diet

Treating Celiac Disease by Avoiding Foods Other Than Gluten

Going Gluten-Free to Treat Disorders Other Than Celiac Disease

Chapter 14: Celiac Disease and Pregnancy, Children, and Beyond

Pregnancy and Celiac Disease

Timing of Gluten Introduction in Infancy

Detecting Celiac Disease in Children

Starting Your Child on a Gluten-free Diet

Shopping and Cooking with Your Child Who Has Celiac Disease

Growing Up Gluten-Free

Chapter 15: Ongoing Care of Celiac Disease

Monitoring Your Celiac Disease

Managing Ongoing Nutrition Issues

Falling Off the Diet

Taking Charge of Your Celiac Health

Being an Advocate for Your Celiac Health

Chapter 16: What the Future May Hold

Devising Better Ways of Determining Your Risk of Getting Celiac Disease

Finding Out Why Genetically Susceptible People Get Celiac Disease

Improving Ways to Diagnose and Monitor Celiac Disease

Developing New Treatments for Celiac Disease

Preventing Celiac Disease: When to Introduce Gluten in a Child’s Diet

Increasing Public Awareness

Identifying Areas for Further Investigation

Part V: The Part of Tens

Chapter 17: Ten Frequently Asked Questions

Do I Need to Have a Small Intestine Biopsy to Diagnose Celiac Disease?

Can I Protect My Child from Getting Celiac Disease?

Should I Have My Child Tested for Celiac Disease?

Can You Outgrow Celiac Disease?

If I Have Celiac Disease, Will My Child or Sibling Also Have It?

How Much Gluten Can I Safely Consume If I Have Celiac Disease?

Can I Skip the Diet and Just Take an Iron Supplement to Treat My Low Iron?

Should My Whole Family Eat Gluten-free If Only One Member Has Celiac Disease?

Is It All Right for Me to Eat Oats?

Does Avoiding Gluten Protect Me from Getting Other Autoimmune Diseases?

Chapter 18: Ten Tips for Living Successfully with Celiac Disease

Strive to Be Healthy

Keep Informed about Your Disease

Discover How Avoiding Gluten Is Sexy

Prepare for Your Child’s Visit to Friends

Learn How to Eat Out without Standing Out

Figure Out How to Save On Your Food Purchases

Be Prepared for Blank Looks (Or Worse)

Have a Good Answer to the Inevitable Question — “What Happens When You Eat Wheat?”

Pack Your Bags, We’re Going To . . .

Deal with the Slipups

Chapter 19: Ten Myths, Misperceptions, and Falsehoods about Celiac Disease

Heavy People Can’t Have Celiac Disease

Eat Gluten and You Feel Immediately Ill

You Can Have Borderline Celiac Disease

You Cannot Eat Buckwheat

You Must Avoid All Products with Gluten

Vinegar Is Forbidden

Feeling Fine Means No Celiac Disease

You Are More Likely to Have Food Allergies and Food Intolerance

You Can’t Share Cooking Implements

If Your Old Symptoms Return, It’s Likely Due to Celiac Disease

Part VI: Appendixes

Appendix A: Web Sites Wor th Visiting

General Celiac Disease Web Sites

Determining Whether Your Child Is Growing Properly

Determining Whether You or Your Child Are at a Healthy Weight

General Nutrition, Vitamins, and Minerals

Gluten-Free Cooking and Eating

Ordering Gluten-Free Foods Online

Where to Buy Pure Oats

Choosing a Gluten-Free Beer

Eating Out Gluten-Free

Dietary Restrictions Apart from Living Gluten-Free

Other Gastrointestinal Conditions

Appendix B: Organizations for People with Celiac Disease

Celiac Disease Societies and Support Groups

Foundations and Organizations

Celiac Disease Centers at University-based Medical Institutions

Index